Please Support Me On My Journey
I’m Katie and I’m an avid user of social media. Whilst I enjoy using social media for personal use and keeping in contact with my loved ones, there is a message throughout that is important to me.
I have a connective tissue disorder called Ehlers-Danlos Syndrome. It is rarely known amongst medical professionals. Its sufferers are often not believed, and many spend years and years of misdiagnosis. Every day I live with chronic pain, discomfort and fatigue. I have various associated conditions because of EDS. EDS is a multi-systemic disorder that affects every part of the human body and its symptoms may vary from mild to life-threatening. There is no cure and it is progressive.
There isn’t a day that goes by where I don’t talk about EDS; whether it’s how I’m feeling, my symptoms or sharing information about it. I do this by writing about it on my Facebook page, my blog and on my Twitter. I talk about it on my YouTube channel and mention it occasionally on my Instagram posts. I don’t want anyone to feel isolated, lonely and have no hope from having EDS. By voicing about EDS, more and more people will learn to understand and judge less.
All I ask is that you can follow all of my social media so that together, we can raise awareness and support those who need it.
Facebook page for EDS; https://www.facebook.com/DinkyktsEdsDiaries/
Facebook page for my Instagram and blog; https://www.facebook.com/kts.faahion.beauty/
YouTube channel; https://www.youtube.com/user/KatieMarieWe
Please keep on sharing this post.
Thank you all so much. ❤️❤️