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Showing posts from February, 2018

What Is Perniosis?

Hi everyone!
It’s me again, and I hope you’re doing okay?! As I work my hardest to raise awareness about Ehlers-Danlos Syndrome (EDS) across all of my social media platforms and it’s been a while since I went into detail about my health issues. So, I thought it might be a good idea to talk about my different health issues that are all down to the EDS. If you’re new to my blog and wondering what EDS is then scroll back to a previous post from around two years ago and you’ll see what it is. To put it in simple term, it’s a connective tissue disorder caused by a faulty collagen.  In this post, I want to talk about Perniosis. I’ll tell you how it affects me and then some information about it. I started getting pain, discomfort and difficulty in putting pressure on my feet. This affected me more during certain weather conditions. At first I thought it was from a twisted ankle injury that I sustained previously so tried to rest it when I could and ignore it other times. I’d seen a GP about it…

Happy 2nd Birthday To My Niece

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Hi everyone!!
So today it’s my niece, Ciara’s second birthday and I’m just so excited for her! I can’t believe that she has been in my life for two years and I’m wondering where the time is going?!  It doesn’t feel like two minutes since I received a phone call off my mum telling me that my sister had gone into labour, now as much as I was excited I did feel a little anxious. This was a life changing experience, not just for my sister and my brother-in-law but also to both families. We already knew what gender the baby was going to be but I couldn’t wait to find out what the name was going to be. Now the name; there were a few little teething problems with pronouncing ‘Ciara’ as it’s the Irish spelling of Keira like Keira Knightley. 





Ciara, my little love, you are the sunshine in all our lives. That’s your doting loving parents, your auntie, both sets of Grandparents, Great Grandparents and everyone else who holds you dear to their hearts. I love your personality as you bring me love, ki…

Ten Random Facts About Me

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Hey everyone!!
I wanted to do something a little different and perhaps a bit more fun for you to read than my usual posts. I’m going to write down a list of ten facts that not many would know about me. 



1. I have social anxiety and this means I get really awkward in groups of people. Even with certain people I know, I struggle so it’s not easy. 
2. I once got in trouble for bursting out laughing when the tutor was talking to the class at college. The member of staff who was helping me had dozed off and suddenly snorted which made me jump hence why I burst out laughing. I felt so embarrassed as everyone turned to look at me. What made it worse, she did it again so I struggled to stop laughing. 
3. I had driving lessons when I was 17/18. The car had mobility adaptions.
4. My favourite childhood book series is the Malory Towers by Enid Blyton. 
5. Once after I had a Hydrotherapy session at the hospital, I was getting into my wheelchair and my elbow had dislocated. I ended up going to surgery a…