DinkyKts World

Hi guys! I think this post might be a little bit of a ramble which I hope you don't mind but I was just thinking about my life and what things I have to look forward to. This year has gone rather fast, I cannot believe it's the 20th of November already!! The last few months have been a little quiet for me but it isn't all bad. My pain levels have increased and I feel like my health issues have deteriorated, and this has made some impact on my social life. I'm the kind of person who likes to keep going despite how I'm feeling but lately; it has been more difficult. Sometimes it has gotten me down and I felt like I was missing out but when it's been possible, I just try to focus on my blog and my YouTube channel. Even then it can be a challenge finding inspiration and motivation, then this makes me feel like I'm a rubbish blogger. Currently I have been struggling with the top of my back; right across from one shoulder blade to another. I have kyphoscolios...

Hi peeps!!  Yay it's the weekend! I hope you're all okay?! My health has been taking its toll on me a little but read my Facebook page www.facebook.com/DinkyktsEDSDiaries for more info.  It's now August and the subject of this post was actually publicised back in January. The subject is the thing that Perrie Edwards from Little Mix wore in the Touch music video. Why you ask?  From the first moment I saw it, it made me feel a little apprehensive. It reminded me of the many years I had to endure wearing a spinal grace (and full length callipers, not forgetting a neck brace when I was really tiny!) and not once did I like wearing it. Wearing it often made me sweaty, hot and sticky. My movements were severely restricted. I couldn't just scratch something if it was itchy as I would have to go and get undressed for it to be removed just so that itch could be attended to. When they did the castings for new ones; it hurt and I'd often have to travel back home on a two and a...